CfDC Minutes — September 7, 2011

Attending: Jack Bernard, Chair; Tom Bayer; Gerald Hoff; Bob Meyer; Els Nieuwenhuijsen; Paul Guttman; Adena Rottenstein; Jason Towler; Tracy Wright; Randi Johnson; Patricia F. Anderson; Anna Clements; Terry Soave; Carolyn Grawi; Emily Campbell; Anna Ercoli Schnitzer (minutes).

Jack welcomed the members to the new school year, and introductions were made around the table.


Bob circulated flyers about PATH and Enhance Fitness, National Kidney Foundation classes/workshops for those with chronic health concerns, providing flexibility and increased energy regardless of conditions.

Carolyn announced the presentation of the AACIL Gala on Oct. 22nd, saying it is the 35th anniversary of the Center.

Jack recommended the book “Rising Up” by Anna York.

Anna Ercoli Schnitzer presented the Investing in Ability schedule (theme being “Maximizing Your Ability”) in the form of the draft for the poster. Input is welcome. Anna encouraged everyone to attend the events that start on October 24th and last through November 12 (see for details, please)

Anna Ercol Schnitzer spoke about Jane Vincent’s soon-to-be-published book “Implementing Cost-Effective Assistive Computer Technology” and asked the Council members to click on the “I’d like to read this book on Kindle” link on the amazon site.

Emily described the Buddy Walk on September 25th at 3 pm (registration at 2) to be held at Gallup Park. Last year with 750 walkers, $60,000 was raised to be used for scholarships and classes for children with Down syndrome. A band “No Obstacles” will play, and there will be a silent auction. Emily also mentioned that she is working as an advocate for the Down Syndrome Support Group and has spoken to medical students and social workers. Go to donation form.

Anna Clements told about the Social Justic Conference that would have a disability workshop as a focus (to be held in late winter or early spring) revealing the implications of differing views of disability. If you would like to discuss or collaborate with her on this, please contact: asiobhan at


Carolyn spoke on the different models of disability (she said that this is a 3 hour class but she intended to convey the information in 28 minutes). She spoke of the medical (moral) model; the social (minority or civil rights) model; and described the barriers in the environment that prevent interactions. Also described was the new WHO definition ICF that is actually a classification of functioning, disability and health; it presents terminology that is uniform and systematic. It is endorsed by many professional organizations but the DSM differs; data collection is difficult; policies in individual cases may not conform. Mention was made of the possibility of putting Carolyn’s PowerPoint in SlideShare. View the World report on Disability.

Jack mentioned that there is also a legal model, e.g., ADA regulations, which lead to policies that provide huge improvements for some people and none at all for others.

Discussion ensued about whether “inclusion” may be a barrier, that all groups are not homogenous, who decides for the individual about disability, some aspects of limitation are actually physical—not social; with TBI methods of communication may differ, a “crip” hierarchy, legitimate versus illegitimate disability; “am I disabled enough?”, intersection of race/gender/socio-economic levels with disability issues, quality of information on the Internet, CIL’s philosophy of celebrating life for all, and other topics.